• PHOTO EXHIBITIONS



    The symposium will host two photo exhibitions on Friday 26 September, in the Conference Foyer.
    You will be able to meet and interact with the artists on site.

  • « [CO]ERRANCE, A History of Diagnosis »

     

    By Djamila Beldjoudi-Calin
    www.djamilacalinphotographe.com

    [CO]ERRANCE, A History of Diagnosis is a photographic exhibition created by photographer artist Djamila Beldjoudi-Calin, who is also the mother of a young boy affected by a rare syndrome. The exhibition depicts the experiences and feelings of people affected by rare diseases and their loved ones regarding diagnostic wandering and, for some, the transition from pediatric to adult care.

    Composed of 8 photographic diptychs, each is accompanied by a poem from the participant inspired by Japanese haiku to express their suffering through words. The mirror is used as an instrument of self-perception or introspection.

    Dialogue between peers
    In diagnostic odyssey and transition, there is resemblance and a space - that of temporality. Internal temporality of the patient and their entourage, but also external temporality of caregivers, researchers, and administrative institutions. There is darkness, anger, incomprehension, sadness, and there is also light, hope, joy, much love, recognition, and sometimes relief when there are small victories.

    Watch the presentation video: www.youtube.com

  • « En quête »



    By Maxime Morsa
    PhD, Assistant Professor in Qualitative Research
    Adaptation, Resilience and Change (ARCh)
    Research Unit Faculty of Psychology, Speech Therapy and Educational Sciences - University of Liège, Belgium

    En Quête is an exhibition in which adolescents living with cystic fibrosis photograph their transition into adulthood :
    https://en-quete.muco-cftr.fr/

    Changing, becoming an adult involves mechanisms so numerous and complex that they can be difficult to express when experienced—and appear inaccessible when they are not. The result of a year-long Photovoice research project conducted with adolescents, who visually captured what "becoming an adult" means to them, alongside an international contest, En Quête seeks to overcome the barrier of misunderstanding through visual storytelling. It also aims to support the construction of a narrative about these phenomena from the perspective of the adolescents themselves.  

    * Poster translation : Adolescents with cystic fibrosis photograph their transition to adulthood
    Photovoice project conducted following the Mukado Apprentis study

     
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